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Helpful Links

U.S. House of Representatives
U.S. Senate
Congressional Brain Injury Task Force
Defense and Veterans Brain Injury Center (DVBIC)
CDC Injury Center
Health Resources and Services Administration (HRSA)

Coalition Work in Washington, D.C.

The Brain Injury Association of America (BIAA) works closely with many coalitions in Washington D.C. BIAA and other organizations work together to advance disability initiatives at the Federal level which in turn promotes BIAA’s legislative priorities including access to care, increased funding for TBI programs and research, and growing the Congressional Brain Injury Task Force. An organized coalition is important in exercising power over the policymaking process in Congress.

  • Need for a coalition (policymakers demand it, source of power, and helps provide support/assistance to policymakers and their staff).

  • Composition of the coalition (cross-disability consumers and providers and nontraditional groups).

  • Cohesion (keep the disability community together).

  • Synergy.

  • Skilled individuals performing varied tasks working together.

  • Leadership (policy entrepreneur).

  • Responsibility (carrying out agreed on tasks).

BIAA is active in the following Coalitions:

Consortium for Citizens with Disabilities
The Consortium for Citizens with Disabilities (CCD) is a coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.
http://www.c-c-d.org/

BIAA is a member of the following CCD task forces

Health Task Force

The CCD Health Task Force works on all the issues encompassed in the very broad term "health". Specific emphasis is placed on private health insurance; public programs such as Medicaid and Medicare; managed care, as well as quality assurance and consumer education and protections.
http://www.c-c-d.org/rubriques.php?rub=taskforce.php&id_task=6

Long Term Services and Supports Task Force

The Task Force on Long Term Services and Supports addresses the issues concerning non-acute health, community living, employment supports, recreational assistance, and other supports that enable individuals with disabilities of all ages to be independent and productive members of the community. We take an expansive view of long term supports, defining Personal Assistance as "One or more persons or devices that help an individual with a disability to perform everyday tasks that they would otherwise perform for themselves if they were not disabled."
http://www.c-c-d.org/rubriques.php?rub=taskforce.php&id_task=9

Veterans and Military Families Task Force

The CCD Veterans and Military Families Task Force advocates for policies and follows issues of concern to veterans with disabilities and military family members with disabilities.
http://www.c-c-d.org/rubriques.php?rub=taskforce.php&id_task=16

Education Task Force

The Education Task Force monitors federal legislation and regulations that address the educational needs of children with disabilities and their families, including the Individuals with Disabilities Education Act (IDEA) programs. The Education Task Force advocates for enhance opportunities for children under these laws.

http://www.c-c-d.org/rubriques.php?rub=taskforce.php&id_task=2

Habilitation Coalition

The mission of the Habilitation Benefits Coalition is to coordinate and leverage advocacy for coverage of habilitation benefits in the essential health benefits package that all individual and small group private insurers must offer starting in 2014, as well as ensure the implications of the contents of the EHB package on the benchmark plans offered under the Medicaid program as well as the benefits that are protected under lifetime and annual cap prohibitions are not unjust for habilitation.
http://habcoalition.wordpress.com/

Independence through the Enhancement of Medicare and Medicaid (ITEM) Coalition

The ITEM Coalition is devoted to raising awareness and building support for policies that will enhance access to assistive devices, technologies and related services for people with disabilities and chronic conditions. The Coalition is consumer-led and includes a diverse set of disability organizations, aging organizations, other consumer groups, voluntary health associations, and non-profit provider associations.
http://itemcoalition.org/

Coalition to Preserve Rehabilitation – Steering Committee Member

The Coalition to Preserve Rehabilitation (CPR) is a coalition of national consumer, clinician and membership organizations with the goal of preserving access to rehabilitation services. CPR will advocate for policies that ensure access to rehabilitative care so that individuals with disabilities, injuries or chronic conditions may regain and/or maintain their maximum level of independent function.
http://preserverehab.org/

Future Care Coalition – Founding Partner

The Future Care Coalition (FCC) is an alliance of disability, patient, consumer and provider organizations committed to protecting the health and financial security of current and future Medicare beneficiaries who have incurred an injury, disability or chronic condition as the result of an accident led by the Brain Injury Association of America (BIAA) and the United Spinal Association. The goal of the Future Care coalition is to ensure that the voice of this population is represented and the Medicare rights of those who may have received a financial settlement in response to an accident, injury, or illness is preserved.
http://futurecarecoalition.com/

Medicare Therapy Cap Coalition

The Medicare Therapy Caps places a cap on Occupational Therapy, Physical Therapy and Speech-Language Pathology Services. The Cap bars people from getting the rehabilitation services they need to live life to its fullest. The therapy cap is opposed by both consumer and provider organizations at the national state and local level. People with injury illness and disabilities need access to rehabilitation services so they can live as productive, independent and satisfying lives as possible. The Therapy Cap Coalition mission is to remove the therapy cap from federal law.
https://www.facebook.com/pages/Stop-the-Medicare-Therapy-Cap/290661517047

Injury and Violence Prevention Network

The Injury and Violence Prevention Network is a group of national organizations that support injury and violence prevention policies at the national level and advocates for federal funding for injury and violence prevention. The Safe States Alliance convenes and leads the Network, including facilitating monthly calls for information sharing and coordinating and collaborating on joint strategies for advancing shared goals.
http://www.safestates.org/?IVPN

Disability and Rehabilitation Research Coalition (DRRC)

The DRRC is a coalition of national non-profit organizations committed to improving the state of rehabilitation and disability. The DRRC seeks to maximize the return on the federal investment in such research with the goal of improving the ability of Americans with disabilities to live and function as independently as possible. The Coalition plays a leadership role in increasing and leveraging federal resources devoted to disability and rehabilitation research.

National Collaborative on Children with Brain Injury (NCCBI)

NCCBI is coalition working to identify critical gaps in educational services for children with brain injury, make policy and research recommendations, and share information, tools, supports and services for children with TBI in a school setting.
http://cbirt.org/nccbi/

 
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