Guidelines for the Rehabilitation and Chronic Disease Management of Adults with Moderate to Severe Traumatic Brain Injury

How much rehabilitation should adult patients with moderate to severe traumatic brain injury (TBI) receive, in what setting, and at what time? The Brain Injury Association of America (BIAA) is teaming up with Brain Injury Research Center at the Icahn School of Medicine at Mount Sinai to answer these questions.

Individuals who sustain TBIs rarely have access to rehabilitation of sufficient timing, scope, duration, and intensity that would allow them to recover to the maximum extent possible. That’s because treatment decisions are controlled by payers – insurance companies and public policymakers – instead of by doctors, patients, and family caregivers. When a person’s care is delayed, discontinued, or denied altogether, the result is often increased re-hospitalization rates and greater levels of disability. This creates a cycle of joblessness, homelessness, and dependence on public programs.

BIAA and Mount Sinai are addressing this problem head-on through the development and widespread distribution of Guidelines for the Rehabilitation and Disease Management of Adults with Moderate to Severe TBI. The goals of this project are to:

  1. Identify and fully describe the continuum of care available following TBI;
  2. Determine the evidence for various rehabilitative treatments and, based on that evidence and/or expert opinion, make recommendations for treatment and management in various settings;
  3. Produce a document that supports improvements in the quality and consistency of rehabilitation treatment; and
  4. Broadly disseminate the recommendations to payer, provider, patient, and advocacy communities in an effort to increase access to and quality of care.

For specific questions about the project, contact Marianna Abashian, BIAA director of professional services.