Stress Experienced by Family Members and Spouses

Past Studies

Past Studies: on families of people with traumatic brain injury have consistently demonstrated high levels of overall distress including diminished social interaction, isolation, and increased levels of stress, depression, and anxiety. Research is lacking, inconsistent, and contradictory regarding the nature of the relationship between family members and the characteristics of the person with traumatic brain injury.

This Study

This Study: analyzed data solicited from 116 persons with brain injures and their family members who served as caregivers. The researchers found that a high proportion of relatives reported feelings of distress that did not diminish over time. The researchers found data implying that depression, anxiety, and feelings of extreme isolation can occur as much as four years after injury. Spouses, particularly the male spouse, expressed feeling higher levels of distress than did other family members.

The researcher’s findings suggest that information, emotional support, and practical advice are highly valued by family members within the first few years following the injury date.

Who May Be Affected By These Findings

Persons with brain injuries, spouses of persons with traumatic brain injury, live-in relatives of persons with traumatic brain injury, and health care providers

Caveats

This study was limited in design by sample representation and subjective measurement techniques. This study did not include other possible contributing factors, such as preexisting problems, injury-related problems, and non-injury-related post injury stresses.

Bottom Line

Family caregivers of persons with traumatic brain injury revealed they felt alienated, isolated, overwhelmed, and mentally preoccupied. Spouses implied they experienced more distress than other family members did. Future research specifically addressing the experiences of spouses would assist in developing interventions for them. This study could not fully identify the support systems, family interactions, coping skills, or financial and medical services that would alleviate relatives’ distress.

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